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| Decreased Mobility/Muscle Wasting |
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| * If still mobile, the legs are growing weaker and less reliable * As thighs weaken, more assistance is required when rising or walking * More apathetic about movement within the house, sometimes choosing to spend a lot of time in a favorite chair, for example, even when self- movement or easy transfers are still possible * Less interested in outings, which have become more difficult * Eventually, it is likely that the patient will be unable to get out of bed * When bedridden, it becomes increasingly difficult to turn over without help * Generally, the legs lose strength before the arms do * Inactivity while on Decadron does allow the drug to cause faster muscle atrophy, with the thighs acting as the prime target * As things progress, the legs may wither considerably as muscle is lost |
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| What the Patient May Be Feeling * Frustrated over the loss of independence * Angry about being "babied" when caregivers offer physical support * Curious and hopeful about whether physical therapy could regain motor function * Passionate and desperate about exercising in a final effort to halt the deficits * Apathetic toward being moved from place to place if no longer able to enjoy daily activities once there * Short-tempered toward the caregiver if the assistance is clumsy, awkward, or uncomfortable * Legitimately fearful of accidents and injury when transferred by the caregiver * Envious that the primary caregiver has more mobility and freedom, sometimes leading to possessiveness, or fussing when the caregiver has been out of the room for longer than a few minutes * Shameful over "burdening" the caregiver (especially if the primary caregiver is an aged spouse, is significantly smaller than the patient, or has back problems) * Sorry that he or she is unable to offer the normal help around the house, especially if spending most of the time in a public room where it is more obvious that household chores may be neglected * Mentions previous strength and stamina in an effort to remind him- or her- self of what they used to be capable of * Depressed because outings or even changes of venue within the house have become more limited, meaning that the world has suddenly grown very small * Aware that the physical deficits make him or her feel like an invalid * Afraid that as motor deficits increase, his or her quality of life will be minimal |
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| What the Caregiver May Be Feeling * Concerned over whether he or she has the strength to support the patient safely * Worried that the patient will attempt to walk without supervision and suffer a fall * Achy (especially if he or she already has back problems) * Afraid of hurting the patient when making bedding adjustments * Curious about equipment that might be helpful * Frustrated by spending so much time in one room of the house * Tired, if needed throughout the night to help the patient move from the bed to the toilet or to address other needs resulting from the lack of physical mobility |
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